In his first interview since the death of his week-old daughter earlier this month, country singer Randy Rogers tells People that baby Rumer Rain was born with a rare genetic disorder that leads to breathing and feeding difficulties. “She wouldn’t eat and she wouldn’t wake up…It was heart-wrenching and grueling not knowing what was wrong,“ says Rogers. Ultimately, the diagnosis came back as nonketotic hyperglycinemia, which affects about 1 in 66,000 newborns in the U.S. “[My wife] Chelsea and I always thought that we were two peas in a pod. Turns out literally we are, genetically,“ Rogers says. “We have the exact same recessed gene. The odds are astronomical.“ Rogers added that they do want to have more kids, but will have to use IVF because of the recessed gene.
Randy Rogers Opens Up About Death of Newborn Daughter : People.com: http://www.people.com/article/randy-rogers-opens-up-death-newborn-daughter